Disabilities Resources for Adult Learning Professionals
National Resources
The National Dissemination Center for Children with
Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013-1492
(800) 695-0285 · v/TTY
(202) 884-8441 · fax
nichcy@aed.org
http://www.nichcy.org
NICHCY is the national information and referral center that provides
information on disabilities and disability-related issues for families,
educators, and other professionals. NICHCY provides information
and makes referrals in areas related to: specific disabilities, early
intervention, special disability organizations, professional
associations, educations rights, transitions to adult life, and much
more. NICHCY’s services include personal responses to
individual questions, publications on a wide variety of disability
related topics, referrals to other organizations and sources of help,
and information searches of their databases and library.
The National Clearinghouse on
Postsecondary Education for Individuals with Disabilities (HEATH)
The George Washington University
HEATH Resource Center
2121 K Street, NW Suite 220
Washington, DC 20037
(202) 973-0904 · v/TTY
(202) 994-3365 · fax
askheath@gwu.edu
http://www.heath.gwu.edu
HEATH is a center for information exchange about educational support
services, policies, procedures, adaptations, and opportunities at
American campuses, vocational-technical schools, and other postsecondary
training entities for individuals with disabilities. HEATH
publishes resource papers, fact sheets, directories, and fosters a
network of professionals in the arena of disability issues.
The Job Accommodations Network (JAN)
PO Box 6080
Morgantown, WV 26506-6080
(800) 526-7234 · v/TTY in the United States
(800) ADA-WORK · v/TTY in the United States
(304) 293-7186 · v/TTY Worldwide
(304) 293-5407 · fax
jan@jan.icdi.wvu.edu
http://www.jan.wvu.edu
JAN represents the most comprehensive resource for job accommodations
available. JAN provides information on job accommodations and
information on the Americans with Disability Act. JAN’s work
helps employers, people with disabilities, rehabilitation professionals,
and people affected by disability.
The National Rehabilitation Information
Center (NARIC)
8201 Corporate Drive
Suite 600
Landover, MD 20785
(800) 346-2742
(301) 459-5900 · v
(301) 459-4263 · fax
(301) 459-5984 · TTY
naricinfo@heitechservices.com
http://www.naric.com
NARIC is an information Center funded by the National Institute on
Disability and Rehabilitation Research to serve members, health
professionals, educators, rehabilitations counselors, students,
librarians, administrators, researchers, and other professionals.
NARIC offers information products online. NARIC also has a
literature collection and they make their products available in a
variety of ways.
American Association of People with
Disabilities (AAPD)
Main Office
1629 K Street NW, Suite 503
Washington, DC 20006
(800) 840-8844
(202) 457-0473 · fax
(202) 457-0046 · v/TTY
http://www.aapd.org
AAPD is the largest national nonprofit cross-disability member
organization in the United States, dedicated to ensuring economic
self-sufficiency and political empowerment for the more than 56 million
Americans with disabilities. AAPD works in coalition with other
disability organizations for the full implementation and enforcement of
disability nondiscrimination laws, particularly the Americans with
Disabilities Act of 1990 and the Rehabilitation Act of 1973.
National Association for Rare Disorders (NORD)
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
(800) 999-6673 (voicemail only)
(203) 744-0100 · v
(203) 797-9590 · TTY
(203) 798-2291 · fax
orphan@rarediseases.org
http://www.rarediseases.org
NORD is a unique federation of voluntary health organizations
dedicated to helping people with rare "orphan" diseases and assisting
the organizations that serve them. NORD is not a government
agency. It is a non-profit, voluntary health agency that exists to serve
rare-disease patients and their families. Our primary sources of funding
are contributions, membership fees, and revenues from the sale of our
products, such as our books and Rare Disease Database reports. Most of
the money donated to NORD goes directly to programs and services. Copies
of our annual report are available upon request.
Attention Deficit Disorders
Organizations
Children and Adults with Attention Deficit/Hyperactivity Disorder
(CHADD)
8181 Professional Place, Suite 150
Landover, MD 20785
National Resource Center on AD/HD
(800) 233-4050
(301) 306-7070 · v
(301) 306-7090 · fax
http://www.help4adhd.org/info_request.cfm
http://www.chadd.org
http://www.help4adhd.org
CHADD, founded in 1987, is a national non-profit, tax-exempt
§501(c)(3) organization providing education, advocacy and support
for individuals with AD/HD. In addition to an informative web
site, CHADD also publishes a variety of printed materials to keep
members and professionals current on research advances, medications and
treatments affecting individuals with AD/HD. The organization has
a small national staff, which manages the day-to-day responsibilities,
while its Board of Directors sets policy and oversees the organization's
well being. CHADD is composed of dedicated volunteers from around the
country who play an integral part in the association's success by
providing support, education and encouragement to parents, educators and
professionals on a grassroots level through CHADD chapters.
Attention Deficit
Disorder Association (ADDA)
15000 Commerce Pkwy
Suite C
Mount Laurel, NJ 08054
(856) 439-9099· v
(856) 439-0525· fax
adda@ahint.com
www.add.org
ADDA is a national nonprofit organization as defined by
§501(c)(3) of the Internal Revenue Code. It has been in existence
since 1989. The mission of ADDA is to provide information, resources and
networking to adults with AD/HD and to the professionals working with
them. In so doing, ADDA generates hope, awareness, empowerment and
connections worldwide in the field of AD/HD through bringing together
science and the human experience.
Vision Impairment
Organizations
American Council
of the Blind (ACB)
1155 15th Street, NW, Suite 1004
Washington, DC 20005
(800) 424-8666
(202) 467-5081 · v
(202) 467-5085 · fax
info@acb.org
http://www.acb.org
ACB is the nation's leading membership organization of blind and
visually impaired people. Founded in 1961 and incorporated in the
District of Columbia, the Council strives to improve the well-being of
all blind and visually impaired people by serving as a representative
national organization of blind people; elevating the social, economic
and cultural levels of blind people; improving educational and
rehabilitation facilities and opportunities, etc. ACB offers a
number of services such as toll-free information on all aspects of
blindness, scholarship assistance, public education and awareness
training, support to consumer advocates, legal assistance on matters
relating to blindness, etc.
American Foundation
for the Blind (AFB)
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600 · v
(212) 502-7777 · fax
afbinfo@afb.net
http://www.afb.org
AFB, to which Helen Keller devoted her life in 1921, has been
eliminating barriers that prevent the ten million Americans who are
blind or visually impaired from reaching their potential. AFB is
dedicated to addressing the most critical issues facing this growing
population: independent living, literacy, employment, and technology.
AFB is a one-stop information and referral resource for people who are
blind or visually impaired, the organizations and individuals that serve
them, and the general public. AFB is the leading publisher of
professional materials on blindness and low vision through its
publishing arm, AFB Press, and a national advocate representing the
interests of blind or visually impaired people before Congress and
governmental agencies.
Recordings for the
Blind and Dyslexic (RFB&D)
20 Roszel Road
Princeton, NJ 08540
(866) 732-3585 · v
(800) 221-4792 · member services
(609) 987-8116 · fax
custserv@rfbd.org
http://www.rfbd.org
RFB&D is an organization that serves all people with “print
disabilities” by providing recorded textbooks and other school
related materials to individuals who cannot read standard print because
of a disability.
Speech/Hearing Impairment
Organizations
American
Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville, MD 20852
(800) 498-2071 · Professionals/Students
(800) 638-8255 · Consumer Line
(301) 897-7355 · fax
actioncenter@asha.org
http://www.asha.org
ASHA is the professional, scientific, and credentialing association
for over 110,000 audiologists, speech-language pathologists, and speech,
language, and hearing scientists. ASHA's mission is to ensure that
all people with speech, language, and hearing disorders have access to
quality services to help them communicate more effectively.
American Association
of the Deaf-Blind (AADB)
8630 Fenton Street, Suite 121
Silver Spring, Maryland 20910-4500
(301) 495-4402 · TTY
(301) 495-4403 · v
(301) 495-4404 · fax
aadb-info@aadb.org
http://www.aadb.org
AADB endeavors to enable deaf-blind persons to achieve their maximum
potential through increased independence, productivity and integration
into the community. AADB has deaf-blind members from all walks of
life with diverse educational, vocational, social, and ethnic/racial
backgrounds. Membership also includes organizations and many people who
are not deaf-blind themselves but who support AADB's mission and
activities. Members receive quarterly publications of the
“Deaf-Blind American” magazine, which is available in large
print, Braille and disk formats. AADB hosts biannual national
conferences. AADB is a non-profit §501(c)(3) organization under the
Internal Revenue Service code.
National Association
of the Deaf (NAD)
8630 Fenton Street
Suite 820
Silver Spring, MD 20910-3819
(301) 587-1789 · TTY
(301) 587-1788 · v
(301) 587-1791 · fax
NADinfo@nad.org
http://www.nad.org
NAD, established in 1880, is the oldest and largest constituency
organization safeguarding the accessibility and civil rights of 28
million deaf and hard of hearing Americans in education, employment,
health care, and telecommunications. A private, non-profit
organization, NAD is a dynamic federation of 51 state association
affiliates including the District of Columbia, organizational
affiliates, and direct members.
Registry of Interpreters for the Deaf
(RID)
333 Commerce Street
Alexandria, VA 22314
(703) 838-0030 · v
(703) 838-0459 · TTY
(703) 838-0454 · fax
http://www.rid.org
It is the goal of RID to promote the professions of interpreting and
transliterating American Sign Language and English. RID provides
international, national, regional, state, and local forums and an
organizational structure for the continued growth and development of the
professions. Information on speakers, workshops, and classes are
offered for the following: the American with Disabilities Act, the
interpreting profession, Interpreter Preparation Programs, National
Testing and Certification, Certification Maintenance Program for
professional development, national Ethical Practices System,
Testimony/Technical Assistance, Interpreter Referral Services, career
opportunities, mentoring, internships, and scholarships to cover testing
fees.
Developmental
Disabilities Organizations
National Mental
Health Association (NMHA)
2000 N. Beauregard Street, 6th Floor
Alexandria, Virginia 22311
(800) 969-NMHA (6642)
(703) 684-7722 · v (Main Switchboard)
(800) 433-5959 · TTY
(703) 684-5968 · fax
infoctr@mentalhealthamerica.net
http://www.nmha.org
NMHA was established in 1909 by former psychiatric patient, Clifford
W. Beers. The National Mental Health Association is the country's
oldest and largest nonprofit organization addressing all aspects of
mental health and mental illness. With more than 340 affiliates
nationwide, NMHA works to improve the mental health of all Americans,
especially the 54 million people with mental disorders, through
advocacy, education, research and service. We have educated millions
about mental illnesses and reduced barriers to treatment and services.
As a result of our efforts, many Americans with mental disorders have
sought care and now enjoy fulfilling, productive lives in their
communities.
Spina Bifida
Association of America (SBAA)
4590 MacArthur Blvd., NW, Suite 250
Washington, DC 20007-4226
(800) 621-3141
(202) 944-3285 · v
(202) 944-3295 · fax
sbaa@sbaa.org
http://www.sbaa.org
SBAA exists to promote the prevention of spina bifida, and enhance
the lives of all affected. The Association was founded in 1973 to
address the specific needs of the spina bifida community, and serves as
the national representative of almost 60 chapters. SBAA's efforts
benefit thousands of infants, children, adults, parents and
professionals each year. The SBAA is a §501(c)(3) nonprofit
organization. SBAA provides services such as toll free (800) Information
and Referral Service, bi-monthly newsletters, insights, legislative
updates, publications, scholarship fund, etc.
American Association on Intellectual and
Developmental Disabilities (AAIDD)
444 North Capitol Street, NW
Suite 846
Washington, D.C. 20001-1512
(800) 424-3688
(202) 387-1968 · v
(202) 387-2193 · fax
http://www.aamr.org
AAMR promotes progressive policies, sound research, effective
practices, and universal human rights for people with intellectual
disabilities. Since 1876, AAMR has been providing leadership in
the field of mental retardation. AAMR is the oldest and largest
interdisciplinary organization of professionals (and others) concerned
about mental retardation and related disabilities. Over 9,500 members in
the U.S. and 55 other countries have chosen AAMR as their
association.
Tourette Syndrome Association,
Incorporated (TSA)
42-40 Bell Boulevard
Suite 205
Bayside, NY 11361-2820
(718) 224-2999 · v
(718) 279-9596 · fax
ts@tsa-usa.org
http://www.tsa-usa.org
The Tourette Syndrome Association, Inc. (TSA) was founded in 1972 in
Bayside, New York. TSA is the only national voluntary non-profit
membership organization in this field. Its mission is to identify the
cause of, find the cure for, and control the effects of this disorder.
Today, TSA has grown into a major national health-related organization
with approximately 50 U. S. Chapters and 300 support groups, and
international contacts around the world. TSA develops and disseminates
educational material to individuals, professionals, and to agencies in
the fields of health care, education and government; coordinates support
services to help people and their families cope with the problems that
occur with TS; funds research that will ultimately find the cause of and
cure for TS and, at the same time, lead to improved medications and
treatments.
United Cerebral
Palsy Association, Incorporated (UCP)
1660 L Street, NW, Suite 700
Washington, DC 20036
(800) 872-5827
(202) 776-0406 · v
(202) 973-7197 · TTY
(202) 776-0414 · fax
webmaster@ucp.org
http://www.ucp.org
For 50 years UCP has been committed to change and progress for
persons with disabilities. The national organization and its nationwide
network of more than 100 affiliates in 37 states, and the District of
Columbia, strive to ensure the inclusion of persons with disabilities in
every facet of society—from the Web to the workplace, from the
classroom to the community. As one of the largest health charities in
America, UCP's mission is to advance the independence, productivity and
full citizenship of people with cerebral palsy and other disabilities,
through our commitment to the principles of independence, inclusion and
self-determination.
Psychiatric Disabilities
Organizations
Epilepsy Foundation of America
(EFA)
8301 Professional Place
Landover, MD 20785-7223
(800) 332-1000
(800) 213-5821 · Membership
(800) 332-4050 · National Epilepsy Library
(301) 577-2684 · fax
postmaster@efa.org
www.epilepsyfoundation.org
EFA is a national charitable organization, founded in 1968. The
only such organization wholly dedicated to the welfare of people with
epilepsy, our mission is simple: to work for children and adults
affected by seizures through research, education, advocacy and
service. More than 60 affiliated Epilepsy Foundations serve people
with seizures, and their families, in hundreds of communities
nationwide. A volunteer board of directors governs our work; a
distinguished board of physicians and scientists oversees the scientific
and medical programs. EFA has a national Epilepsy Library available to
allied health professionals and the general public. EFA is a member of
the National Health Council and the International Bureau for
Epilepsy.
Learning Disabilities
Organizations
Autism Society of America
(ASA)
7910 Woodmont Avenue, Suite 300
Bethesda, Maryland 20814-3067
(800) 328-8476
(301) 657-0881 · v
(301) 657-0869 · fax
info@autism-society.org
http://www.autism-society.org
The Autism Society of America was founded in 1965 by a small group of
parents working on a volunteer basis out of their homes. Over the last
35 years, the Society has developed into the leading source of
information and referral on autism. Today, over 20,000 members are
connected through a working network of over 200 chapters in nearly every
state. Membership in ASA continues to grow as more and more parents and
professionals unite to form a collective voice representing the autism
community. Members receive “The Advocate”, a quarterly
magazine. The mission of the Autism Society of America is to promote
lifelong access and opportunity for all individuals within the autism
spectrum and their families, to be fully participating, included members
of their community.
Learning Disabilities Association of
America (LDA)
4156 Library Road
Pittsburgh, PA 15234-1349
(412) 341-1515 · v
(412) 344-0224 · fax
info@ldaamerica.org
http://www.ldaamerica.org
LDA is a non-profit volunteer organization advocating for individuals
with learning disabilities. It is a national organization devoted
to defining and finding solutions for the broad spectrum of learning
disabilities. LDA has a local chapter in all fifty states,
Washington DC, and Puerto Rico.
National Center for
Learning Disabilities (NCLD)
381 Park Avenue South Suite 1401
New York, NY 10016
(888) 575-7373
(212) 545-7510 · v
(212) 545-9665 · fax
help@ncld.org
http://www.ld.org
The mission of the National Center for Learning Disabilities (NCLD)
is to increase opportunities for all individuals with learning
disabilities to achieve their potential. NCLD accomplishes its mission
by increasing public awareness and understanding of learning
disabilities, conducting educational programs and services that promote
research-based knowledge, and providing national leadership in shaping
public policy. NCLD provides solutions that help people with LD
participate fully in society.
International Dyslexia Association
(IDA)
40 York Road, 4th Floor
Baltimore, MD 21204
(410) 296-0232 · v
(410) 321-5069 · fax
info@interdys.org
http://www.interdys.org
IDA is a non-profit organization dedicated to helping individuals
with dyslexia, their families and the communities that support them. IDA
is the oldest learning disabilities organization in the nation --
founded in 1949 in memory of Dr. Samuel T. Orton, a distinguished
neurologist. Throughout our rich history, our goal has been to provide
the most comprehensive forum for parents, educators, and researchers to
share their experiences, methods, and knowledge.
Chronic Illness
Organizations
National Alliance
for the Mentally Ill (NAMI)
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201-3042
(703) 524-7600 · v
(703) 516-7227 · TTY
(703) 524-9094 · fax
http://www.nami.org
NAMI is a nonprofit, grassroots, self-help, support and advocacy
organization of consumers, families, and friends of people with severe
mental illnesses, such as schizophrenia, schizoaffective disorder,
bipolar disorder, major depressive disorder, etc. Founded in 1979,
NAMI today works to achieve equitable services and treatment for more
than 15 million Americans living with severe mental illnesses and their
families.
National Chronic
Pain Outreach Association, Incorporated (NCPOA)
P.O. Box 274
Millboro, VA 24460
(540) 862-9485 · fax
http://www.chronicpain.org
NCPOA is a non-profit organization established in 1980. Its purpose
is to lessen the suffering of people with chronic pain by educating pain
sufferers, health care professionals, and the public about chronic pain
and its management. NCPOA helps people with chronic pain regain
control of their lives, spreading the message, "You can lead a
fulfilling life despite the pain." NCPOA is funded entirely by
membership fees, donations, foundations, corporate gifts, along with
federal, state, and local government employee contributions.
Brain Injury
Association of America (BIAA)
8201 Greensboro Dr., Suite 611
McLean, VA 22102
(703) 761-0750 · v
(703) 761-0755 · fax
familyhelpline@biausa.org
http://www.biausa.org
BIAA was founded in 1980 by a group of individuals who wanted to
improve the quality of life for their family members who had sustained
brain injuries. Despite phenomenal growth over the past two decades, the
Association remains committed to its grassroots. The Brain Injury
Association of America encompasses a national network of more than
41-chartered state affiliates across the country, as well as hundreds of
local chapters and support groups. BIAA is proud to be a national
nonprofit organization working on behalf of individuals with brain
injury and their families. The Association recognizes the tireless
accomplishments of its constituents across the country—from
individuals with brain injury, medical professionals and family members
to educators, attorneys and corporate partners. Much of the
Association’s success is due to the support of these courageous
people.
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